{"id":54069,"date":"2025-10-29T10:40:59","date_gmt":"2025-10-29T08:40:59","guid":{"rendered":"https:\/\/www.omnesmag.com\/?p=54069"},"modified":"2025-10-29T10:41:00","modified_gmt":"2025-10-29T08:41:00","slug":"societa-eugenetica-sottile","status":"publish","type":"post","link":"https:\/\/www.omnesmag.com\/it\/firmas\/sutil-eugenesia-sociedad\/","title":{"rendered":"La sottile eugenetica proposta dalla nostra societ\u00e0"},"content":{"rendered":"

Quando in una famiglia nasce un bambino con una malattia incurabile, il mondo si blocca. Improvvisamente, la vita che si immaginava diventa un susseguirsi di domande senza risposta. Ma arriva un momento in cui ci si rende conto che non c'\u00e8 alternativa pi\u00f9 umana che imparare a conviverci, perch\u00e9 in questi casi la vita e la malattia diventano un'unica realt\u00e0.<\/p>\n\n\n\n

Nelle societ\u00e0 cosiddette \u201cavanzate\u201d, ci sono risorse per aiutare le famiglie: cure, sostegno psicologico, ricerca, ecc. Eppure, dietro questo progresso, c'\u00e8 qualcosa di inquietante: una tendenza silenziosa all'eugenetica, un'idea mascherata da benessere che suggerisce che solo alcune vite sono degne di essere vissute.<\/p>\n\n\n\n

L'ho sperimentato in prima persona. Lo stesso medico che cura con attenzione mio figlio Alvaro - affetto da fibrosi cistica, una rara malattia genetica - mi ha offerto senza esitazione la possibilit\u00e0 di selezionare embrioni sani nel caso in cui volessi avere altri figli. Le sue intenzioni erano buone, come un modo per evitare la sofferenza. Ma al centro di questa proposta c'\u00e8 un'idea brutale: che mio figlio non sarebbe mai dovuto nascere.<\/p>\n\n\n\n

Grazie alla ricerca medica, \u00c1lvaro pu\u00f2 vivere una vita piena, giocare, ridere, crescere come qualsiasi altro bambino. Ma la stessa scienza che gli d\u00e0 speranza mi suggerisce anche che la sua esistenza \u00e8 un errore che poteva essere evitato. E questo, come madre, mi fa pi\u00f9 male della malattia.<\/p>\n\n\n\n

Perch\u00e9 va contro qualcosa di elementare: la convinzione che ogni vita vale in s\u00e9, senza condizioni, senza filtri, senza diagnosi precedenti che la misurino. Non c'\u00e8 argomento razionale, etico o affettivo che possa giustificare lo scarto di una vita perch\u00e9 imperfetta.<\/p>\n\n\n\n

La societ\u00e0 chiama la selezione degli embrioni \u201cprogresso\u201d, e pu\u00f2 sembrare una soluzione logica. Ma quando me l'hanno proposta, ho avuto la sensazione che mi stessero dicendo - senza dirlo - che se l'avessimo saputo prima, avremmo potuto risparmiare \u00c1lvaro. E questo \u00e8 quanto di pi\u00f9 vicino all'abisso morale io abbia mai provato: immaginare che, in nome della salute, si possa negare la vita a chi si ama.<\/p>\n\n\n\n

Ci sono malattie che si superano e altre che vengono incorporate nella vita fino a diventare parte della propria identit\u00e0. \u00c1lvaro avr\u00e0 una vita meravigliosa, con i suoi occhi marroni e con la sua fibrosi cistica. Non sono cose separate: fanno parte della stessa storia.<\/p>\n\n\n\n

Oggi la scienza ha ottenuto trattamenti che non curano, ma ci permettono di vivere. E questo, lungi dal renderci degli dei, dovrebbe ricordarci qualcosa di essenziale: la vita non si scarta, si accompagna. Non esiste una tecnologia in grado di misurare il valore di un essere umano. E non c'\u00e8 argomento che possa spiegare a un bambino che il mondo sarebbe stato migliore senza di lui.<\/p>\n\n\n

\n
\"\"<\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"

Cuando en el seno de una familia nace un hijo con una enfermedad incurable, el mundo se detiene. De pronto, la vida que imaginabas se convierte en una sucesi\u00f3n de preguntas sin respuesta. Pero llega un momento en el que uno comprende que no hay alternativa m\u00e1s humana que aprender a vivir con ello, porque, […]<\/p>\n","protected":false},"author":3154,"featured_media":54073,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[47],"tags":[],"class_list":["post-54069","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-firmas"],"yoast_head":"\nLa sutil eugenesia que propone nuestra sociedad - Omnes<\/title>\n<meta name=\"description\" content=\"Aunque nuestra sociedad ha logrado un gran progreso t\u00e9cnico y cient\u00edfico, su avance moral y \u00e9tico sigue siendo cuestionable.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.omnesmag.com\/it\/firme\/societa-eugenetica-sottile\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La sutil eugenesia que propone nuestra sociedad - 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